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September 21, 2006

Terri Schiavo's brother responds to misguided op-ed

Topics: The Truth About PVS

Bobby Schindler, Terri Schiavo's younger brother, responded to a op-ed by Ellen Goodman "Playing Vegetative Mind Games." Goodman horribly distorts the new findings regarding patients in PVS, and gleefully points out that Terri would never have benefited from the tests.

Bobby Schindler wrote:

I read your recent column, "Playing vegetative mind games."

The lengths that you and many of your colleagues continue to go to in order to somehow justify the barbaric killing of my sister, Terri, are truly sad and in my opinion a tragic reflection of how you and those that think like you have truly misplaced your humanity.

What is so profoundly frightening about what you wrote is the effort to use this scientifically inaccurate persistent vegetative state (PVS) label to indiscriminately decide when it's permissible to kill those that are disabled. As you pointed out in your column, there are tens of thousands of people that have experienced a brain injury. The idea that certain lives have somehow lost their meaning because they exist in this so-called PVS, which according to you, is some type of "horrifying" state of consciousnesses or lack thereof (not quite sure how you or anyone would have knowledge of this) is equally alarming. It is this form of lethal bigotry that my family battled in our efforts to get help for my sister.

Recently, a British research study concluded that the PVS diagnosis is in fact misdiagnosed more than 40% of the time. Recognizing this finding along with this most recent discovery, and others similar to it, one with any common sense would have to agree that using the completely subjective PVS "diagnosis" as the basis to kill the disabled is clearly outrageous.

Incidentally, I find it remarkable how the voice of disabled community has been all but ignored by most of the popular media. Why are the persons that are truly in harm's way, the disabled, rarely mentioned? There were thirty (30) local and national disability organizations that publicly spoke out on behalf of Terri, yet their voices have been silenced.

Read his response here


Posted by Mary at September 21, 2006 12:12 PM


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